Missing BOTH of our munchkins :(

We are so very proud of Abigail for what going through what she's had to endure, and taking it all like a champ! They finally got her pain under control. She went from Nubain every 4 hours, to every 2 hours, to a constant drip, then to a constant drip PLUS extra, and now she's back at the regular constant drip. She's had a little roller coaster ride of pain there for a few days. She has a bunch of tubes in her and attached to her, which of course is heart breaking for Ian and I. She has an Andersen (through her nose into her tummy), a catheter (which was actually JUST taken out...YAY!), 2 IV's, and then the 4 leads that monitor her oxygen level, heart rate, and respiratory rate. So, a total of 8 cords coming from her. It's not fun to pick her up and move her from her bed to my arms, somehow everything gets ridiculously tangled in the 3 second process haha.

Like I said, she had her Foley catheter removed this morning and they went from suctioning out everything in her tummy with the Andersen tube to putting the tube down beside her bed and doing a down-drip, aka letting gravity suction anything that she may have in there. It's the first step towards getting her to be able to feed! Yay! She'll start with about 15-20 mL of milk per feed, which is less than an ounce, and it will (hopefully) double every 24 hours, depending on how she's tolerating it, until she's at 70 mL every 3-4 hours, which is a little over 2 oz.
It's quite sad to leave her at night, We've been told, and have noticed, that she is very aware of when we're there and not. She gets very fussy when we leave and perks right up when we return. It's amazing how much they notice at only 5 weeks. She's a normal, smart, healthy baby aside from this stinking Hirschsprung's Disease! We're truly blessed!
Unfortunately we have to continue her irrigations (mini enemas) for quite a few years. Hirschsprung's babies run a great risk of developing Hirschsprung's Associated Enterocolitis, or HAEC. This is where the bacteria in the large intestine becomes unbalanced and the intestine swells. The unbalance can be caused by something as little as teething or the flu. Aside from the late diagnosis, or lack of Hirschsprung's diagnosis, this is the leading cause of death in children with Hirschsprung's. So, pretty much I'll be a paranoid psycho for the next 6 or so years, watching over Abigail :)
Luckily Abby only had a miniscule 3 inches taken out of her intestine. Best case scenerio BY FAR! Her surgery went over 4 1/2 hours, but it's awesome to know that she has short segment rather than long segment, which means that the HD (Hirschsprung's Disease) is most likely not genetic. Unfortunately though, the genetic form shows itself more in females, so we're praying that she never has to deal with her children having this passed onto them. HD is also more rare in females. For every 1 female that has the disease (which is rare to begin with), 4 males have it.

Rosalynn is doing wonderful! We talk to her multiple times per day and have been able to Skype with her, as well. She is having such a blast at Grandma's house! One would think that after 3 1/2 years of noise in their house, that the silence would be welcomed. It's not. I miss it and can't wait to have us all back together under one roof!